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WIT - Advocacy for equity in access to transplantation and donation

Sunday September 22, 2024 - 12:30 to 13:45

Room: Çamlıca

Louise Lerminiaux, Costa Rica

Patient Advocate Consultant
Wellness Consulting LRL LLC

Biography

Louise Lerminiaux, MBA has spent 30 years in technology management in a variety of industries across Canada and the USA, the last 14 years in life sciences and transplant diagnostics. She is the second generation of female transplant recipients in her family due to polycystic kidney disease. She received her unrelated living kidney in 2008 and was fortunate to avoid dialysis. Her mother endured dialysis for 10 years starting in 1976, before receiving her related living kidney donation in 1986. Her mother lived an additional 20 years with her transplant. A sister received her deceased donor kidney in 2017. A niece has been diagnosed with PKD while her 3 young children have not yet been tested. In her semi-retirement, Louise is a vocal advocate for patients and changing the standard of healthcare. She specifically speaks out about the challenges she and other female recipients navigate because of their immune suppression and medication side effects. She also advocates for stem cell therapies to prolong the life of the transplanted organ, along with xeno-transplantion and 3D printed organ solutions to address the organ shortage. Louise currently does patient advocacy consulting and lives in Costa Rica.

Presentations by Louise Lerminiaux

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