Organ Donor Family Experience In United Arab Emirates
Rana Salman2, Saista Amin1.
1pediatric gastroenterology , al qassimi women and childrens hospital, sharjah, United Arab Emirates; 2pediatrics, al qassimi women and childrens hospital, sharjah, United Arab Emirates
Introduction: Even though organ donors make a selfless and life-saving contribution, their post-donation well-being is sometimes disregarded, despite the profound and lasting consequences it can have on their own lives.
Method: Several living donors who underwent organ donation were enrolled into this study. They were asked to complete a survey questionnaire through a telephone interview regarding different aspects of their lives after donation.
Results: All selected donors, comprising family members such as parents or second-degree relatives, underwent liver donation ranging from 8 years to 3 months ago. Motivated by witnessing the severe illness and despair of the child, they chose to donate as they were the closest and matching donors. Changes in physical activities and food intake were observed in the months following donation but returned to normal afterward. Sleep patterns remained unaffected. Notable bodily changes included scar appearance and pain, especially with straining, which persisted in some donors for more than a year. Some donors experienced weight loss post-donation. No donors sought the assistance of a psychiatrist or psychologist and none were diagnosed with depression or anxiety. All donors expressed no regrets about their decision to donate, stating that, if given the chance to go back in time, they would willingly donate again. They also encouraged others to consider donation, particularly if their health allows. Despite their positive experiences, donors reported receiving no special treatment or privileges post-donation. Interestingly, some donors expressed a desire for a privilege card, reduced waiting times in queues, and dedicated follow-up appointments as a gesture of appreciation for their contribution.
Conclusion: In summary, this study emphasizes the urgent requirement for heightened awareness and support concerning the well-being of organ donors. Looking ahead, it is crucial to address the overall welfare of organ donors, acknowledging not just the physical and emotional challenges they may encounter, but also the necessity for ongoing post-donation support and recognition. Implementing targeted initiatives, such as the issuance of privilege cards, provision of discount services, establishment of a World Donor Appreciation Day, creation of a donor recognition wall within the hospital, initiation of a social media campaign among other strategies, becomes pivotal. These measures collectively ensure that the organ donation journey remains a positive and affirming experience for individuals who have played a pivotal role in saving and enhancing the lives of others.